Supporting Clinical Quality Registries (CQRs) and enabling engagement between CQRs and the clinical trials community
The ACTA Clinical Quality Registries (CQR) Special Interest Group is Co-Chaired by Jade Newman, Clinical Registries Data Manager for IVF registries within the NPESU at UNSW, and Tamara Hooper, Senior Project Manager at SAHMRI Registry Centre.
Mission
To support and enhance a community of practice for CQRs in Australia.
Our purpose
- Support the professional development needs of the CQR sector
- Explore continuous improvement opportunities and drive best practice to develop the profile of registry science
- Provide a forum for promotion and advocacy of CQRs
- Develop a collegial, collaborative community of CQR experts
Our activities
ACTA's CQR SIG is working to deliver a full program of activities that will deliver on the mission and objectives of the group.
The CQR SIG regularly holds webinars featuring speakers from within the Australian Government, including those who lead policy development for sector, together with subject matter experts.
In late 2022, the SIG convened the inaugural Australian Registry Annual Scientific Meeting (‘The Value of Registries in Challenging Times’) which attracted key opinion leaders from across the sector. This was followed by further successful ASM events in 2023 and 2024. The ASM provides a unique opportunity for dissemination of best practices and enables networking between leaders from disease and discipline specific registries.
The SIG is currently engaged in reviewing sector specific consultations including review of the Healthcare Identifiers Framework project and the revised CQR Framework.
For more details, reach out to acta@acta.au. To apply for membership, please fill out the application form.

Events for this SIG and others in the sector are regularly posted in the events section of the website.
Articles
National Clinical Quality Registry Program – Best practice materials – This collection contains a suite of best practice guides developed under the National Clinical Quality Registry Program.
A National Strategy for Clinical Quality Registries and Virtual Registries 2020–2030 – This strategy is a roadmap for how the Australian health system will collect and use clinical data to improve patient care.
Australian Framework for National Clinical Quality Registries 2024 – The Framework sets out the principles under which all clinical quality registries should be operating and provides clear and practical guidance on how those principles can be implemented.
Realising the potential: leveraging clinical quality registries for real world clinical research
Med J Aust 2022; 216 (6): . || doi: 10.5694/mja2.51443
View online at MJA
Download a PDF
Webinars
CQR SIG webinar – Evidence and approaches to the health economic evaluation of clinical quality registries.
Presented by: Prof Danny Liew and Dr Ella Zomer
Download the slide deck – Prof Danny Liew
Download the slide deck – Dr Ella Zomer
CQR SIG webinar – Data Availability and Transparency (Consequential Amendments) Act 2020
Presented by: Dr Phillip Gould
Download the slide deck
An introduction to the Norwegian Registry for Spine Surgery (NORspine) – a well-established, mature registry set up in 2007.
Presented by: Prof Tor Ingebrigtsen from the Norwegian Registry for Spine Surgery
Presented at: Monash University
View a webinar recording
Latest Resources
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CQR Webinar: Enhancing Healthcare through Quality Registries & Digital Health
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CQR Collaboration Hub Newsletter – The Benchmark
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Exploring greater partnership between Clinical Trial Networks, Clinical Quality Registries and Trial Coordinating Centres with Industry – Environmental Scan
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How can registries drive better translation of real world data into better quality care?
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How can registries drive better translation of real world data into better quality care?
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What we don’t know about the health and economic benefit of trials and registries in Australia
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What we know about the health and economic benefit of trials and registries in Australia
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Health system benefits from improved performance
Latest News
Latest Events
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ACTA Webinar – Developing a Best Practice Guide for Registry Based Trials
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Clinical Quality Registries Webinar : Enhancing Healthcare through Quality Registries and Digital Health
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ACTA 2024 Clinical Trials and Registries Symposium
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2023 Australian Clinical Registry Annual Scientific Meeting “Innovation for Impact”
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Clinical Quality Registries (CQR) SIG member webinar – Oct 2022
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Clinical Quality Registries SIG Member only webinar
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2022 ACTA ASM including the Australian Registry ASM