Clinical Quality Registries Special Interest Group (CQR SIG)

Supporting Clinical Quality Registries (CQRs) and enabling engagement between CQRs and the clinical trials community

The ACTA Clinical Quality Registries (CQR) Special Interest Group is Co-Chaired by Jade Newman, Clinical Registries Data Manager for IVF registries within the NPESU at UNSW, and Tamara Hooper, Senior Project Manager at SAHMRI Registry Centre. 

Mission

To support and enhance a community of practice for CQRs in Australia.

Our purpose

  • Support the professional development needs of the CQR sector
  • Explore continuous improvement opportunities and drive best practice to develop the profile of registry science
  • Provide a forum for promotion and advocacy of CQRs
  • Develop a collegial, collaborative community of CQR experts

Our activities

ACTA's CQR SIG is working to deliver a full program of activities that will deliver on the mission and objectives of the group.

The CQR SIG regularly holds webinars featuring speakers from within the Australian Government, including those who lead policy development for sector, together with subject matter experts.

In late 2022, the SIG convened the inaugural Australian Registry Annual Scientific Meeting (‘The Value of Registries in Challenging Times’) which attracted key opinion leaders from across the sector. This was followed by further successful ASM events in 2023 and 2024. The ASM provides a unique opportunity for dissemination of best practices and enables networking between leaders from disease and discipline specific registries.

The SIG is currently engaged in reviewing sector specific consultations including review of the Healthcare Identifiers Framework project and the revised CQR Framework.

For more details, reach out to acta@acta.au. To apply for membership, please fill out the application form.

Events for this SIG and others in the sector are regularly posted in the events section of the website.

Articles

National Clinical Quality Registry Program – Best practice materials – This collection contains a suite of best practice guides developed under the National Clinical Quality Registry Program.

A National Strategy for Clinical Quality Registries and Virtual Registries 2020–2030 – This strategy is a roadmap for how the Australian health system will collect and use clinical data to improve patient care.

Webinars

CQR SIG webinar – Evidence and approaches to the health economic evaluation of clinical quality registries.
Presented by: Prof Danny Liew and Dr Ella Zomer
Download the slide deck – Prof Danny Liew
Download the slide deck – Dr Ella Zomer

CQR SIG webinar – Data Availability and Transparency (Consequential Amendments) Act 2020
Presented by: Dr Phillip Gould
Download the slide deck

An introduction to the Norwegian Registry for Spine Surgery (NORspine) – a well-established, mature registry set up in 2007.
Presented by: Prof Tor Ingebrigtsen from the Norwegian Registry for Spine Surgery
Presented at: Monash University
View a webinar recording

May 2025

March 2025

December 2024

September 2024

June 2024

March 2024

October 2023

December 2023

 

The Benchmark newsletter is a collaboration between Monash University Clinical Quality Registries, the South Australian Health & Medical Research Institute (SAHMRI) Registry Centre and the Australian Clinical Trials Alliance (ACTA). The newsletter is circulated to members of ACTA’s Registry Special Interest Group.

Please email info@acta.au if you would like to contribute

Group Leadership

  • Jade Newman
  • Tamara Hooper

Board Sponsors

  • Prof Christopher Reid