Clinical Quality Registries Special Interest Group (CQR SIG)

Supporting Clinical Quality Registries (CQRs) and enabling engagement between CQRs and the clinical trials community

The ACTA Clinical Quality Registries Special Interest Group is Co-Chaired by Prof Stephen McDonald, ANZDATA Registry executive and renal physician, and Prof Susannah Ahern, Head, Clinical Outcomes data Reporting and Research Program (CORRP), and Principal Investigator for a number of Registries at Monash University.

Mission

To support and enhance a community of practice for CQRs in Australia.

Our purpose

  • Support the professional development needs of the CQR sector
  • Explore continuous improvement opportunities and drive best practice to develop profile of registry science
  • Provide a forum for promotion and advocacy of CQRs
  • Develop a collegial, collaborative community of CQR experts

Our activities

ACTAs CQR SIG is working to deliver a full program of activities that will deliver on the mission and objectives of the group.

The CQR SIG regularly holds webinars featuring speakers from within the Australian Government, including those who lead policy development for sector together with subject matter experts.

In late 2022, the SIG convened the inaugural Australian Registry ASM (‘The Value of Registries in Challenging Times’) which attracted key opinion leaders from across the sector. The ASM provided a unique opportunity for dissemination of best practices and enabled networking between leaders from disease and discipline specific registries. This was followed by another successful ASM event in 2023.

The SIG is currently engaged in reviewing sector specific consultations including the review of the Healthcare Identifiers Framework project and the revised CQR Framework.

In 2024 the SIG look to delivering another national meeting and will seek to further development of best practices across the CQRs represented.

For further information or to request membership please contact Vivien on vivien.klaver@acta.au.

  • The group are planning to convene an Australian Registry ASM in 2024

12 October 2022
CQR SIG webinar – Evidence and approaches to the health economic evaluation of clinical quality registries.
Presented by: Prof Danny Liew and Dr Ella Zomer
Download the slide deck – Prof Danny Liew
Download the slide deck – Dr Ella Zomer

 

New paper
Realising the potential: leveraging clinical quality registries for real world clinical research
Med J Aust 2022; 216 (6): . || doi: 10.5694/mja2.51443
View online at MJA
Download a PDF

 

20 July 2022
CQR SIG webinar – Data Availability and Transparency (Consequential Amendments) Act 2020
Presented by: Dr Phillip Gould
Download the slide deck

 

April 2022
An introduction to the Norwegian Registry for Spine Surgery (NORspine) – a well-established, mature registry set up in 2007.
Presented by: Prof Tor Ingebrigtsen from the Norwegian Registry for Spine Surgery
Presented at: Monash University
View a webinar recording

December 2023

October 2023

March 2024

June 2024

The Benchmark newsletter is a collaboration between Monash University Clinical Quality Registries, the South Australian Health & Medical Research Institute (SAHMRI) Registry Centre and the Australian Clinical Trials Alliance (ACTA). The newsletter is circulated to members of ACTA’s Registry Special Interest Group.

Please email info@acta.au if you would like to contribute

Group Leadership

  • Prof Stephen McDonald
  • Prof Susannah Ahern

Board Sponsors

  • Prof John Zalcberg
  • Prof Christopher Reid