Draft Only 7 October 2019

Media Release

Consumer Involvement and Engagement Toolkit Launched at

ACTA International Clinical Trials Conference

The Consumer Involvement and Engagement Toolkit was launched at the ACTA International Clinical Trials Conference on Saturday 5 October 2019.

Created by ACTA in collaboration with CT:IQ and a working group of consumers, researchers and research organisations, the Consumer Involvement and Engagement Toolkit provides resources for consumer involvement and engagement at all stages of clinical trials.

Through the use of an interactive map, clinical trial designers can access knowledge and resources to plan, deliver, evaluate and report consumer and community involvement and engagement activities.

The Toolkit contains a small but growing collection of dedicated resources for consumers and the community, providing insights into what it means to become involved in research, and learn more around the role and value of clinical trials.

Through improved public awareness and understanding of clinical trials, consumers can be more confident and better equipped to have input into clinical trials. And, while the Toolkit’s focus is clinical trials, the content is applicable to other types of health research.

ACTA and CT:IQ worked with Australian and international organisations committed to patient-centred research to share key learnings and ideas, in the development of the Toolkit. Collaboration accelerates the development of resources for consumer involvement and creates savings through the use and adaptation of existing resources.

Explore the Consumer Involvement and Engagement Toolkit at https://involvementtoolkit.clinicaltrialsalliance.org.au/