ACTA is working with the Australian Research Data Commons (ARDC) on a broad stakeholder consultation to gather insights and feedback about the Health Studies Australian National Data Asset (HeSANDA). HeSANDA aims to support the sharing and secondary use of health data in a way that brings value to the research community, increases the impact of research, maximises investment in health research, and provides health, economic and social benefits to Australia’s population.
The stakeholder consultation will focus on clinical trialists, consumers with research experience and research participants, to gain feedback on the HeSANDA priorities report and gather more in-depth information about how a national data asset could be designed, built, and implemented. The ARDC will undertake broader consultations at a later date.
Consultations will begin in late May and June and we will continue to bring you updates on the project.
Please contact ACTA Project Officer, Fiona Nemeh (fiona.nemeh@clinicaltrialsalliance.org.au) if you would like to be involved or for more information.