Data linkage can be useful in the context of clinical trials, bringing together records from different data collections related to the same individual. Some of the benefits include:
- a less burdensome method of data collection for participants during a clinical trial
- cost-effective medium to long term follow-up of clinical trial participants
- measurement of healthcare use before and after an intervention to assist in effectiveness and health economic analysis
- post-market surveillance of therapeutics
Australia has a national health data linkage network, the Population Health Research Network (PHRN) that enables existing health data from around the nation to be brought together and made available for research purposes. To date, the PHRN infrastructure has been infrequently used by clinical trials researchers.
ACTA and the PHRN have developed this series of webinars to:
- introduce clinical trial researchers to the PHRN facilities and services available
- demonstrate the benefits of using linked data in trials research
- assist clinical trial researchers to design clinical trials using linked data and apply for access to linked data
We gratefully acknowledge support from the Australian Research Data Commons (ARDC) in delivering this project to you.
The series consists of four sessions:
PHRN data linkage webinar 1
Designing clinical trials using linked data
Presented by Dr Felicity Flack
Wednesday 13 March 1:00pm – 2:00pm AEDT
PHRN data linkage webinar 2
Accessing linked data
Presented by Dr Felicity Flack
Wednesday 27 March 1:00pm – 2:00pm AEDT
PHRN data linkage webinar 3
Ethical considerations
Presented by Dr Felicity Flack
Wednesday 3 April 1:00pm – 2:00pm AEDT
Accessing MBS/PBS data
Presented by Dr Anna Kemp-Casey
Wednesday 10 April 1:00pm – 2:00pm AEDT
To find out more about webinar content and to register, go to the listing on our events page.