HeSANDA Initiative Consultations

Take part in ACTA’s virtual consultation workshops on behalf of the ARDC.

ACTA is working with the Australian Research Data Commons (ARDC) to gather insights and feedback about the Health Studies Australian National Data Asset (HeSANDA).

The HeSANDA initiative aims to build a national collection of data generated through Australian health research and support appropriate and ethical sharing of the data with other Australian researchers. By supporting secondary use of data from health research, HeSANDA aims to stimulate new research ideas, increase the impact of health research, increase the benefits of investment in health research, and ultimately improve the health and wellbeing of people in Australia.

As a first step, the initiative is focusing on data and information collected from investigator-initiated clinical trials.

We are inviting people who are involved in clinical trials research in Australia to attend a 90-minute virtual consultation workshop to provide views on how a national data asset could be designed, built, and implemented in Australia.

We are interested in hearing from:

  • researchers involved in the design and/or conduct of clinical trials,
  • people who work for a clinical trials / research organisations,
  • consumers (patients, carers or people who use healthcare services) who are or have been involved in the design and/or conduct of clinical trials,
  • clinical trial participants (people who have taken part in, are taking part in or are considering taking part in a clinical trial).

Be informed before providing feedback

We ask that everyone providing feedback through the consultation process reads the background paper.

HeSANDA Background and Context

This webinar provides the background and context for the stakeholder consultation. Specifically, how it fits into the scope of the ARDC HeSANDA initiative project. Please be sure to watch the video recording prior to attending a consultation workshop.

Have your say

Once you have read the background paper and/or attended the online webinar, you can have your say on the HeSANDA initiative by registering to attend one of the consultation workshops below.

Consultation Workshops: 16 - 22 June 2021

We are running four sessions; two will focus mainly on issues for consumers / trial participants and two will focus mainly on issues for researchers. Please register to attend one of the four sessions below.


Consumers / Research Participants

Researchers / Clinical Trial Organisations

16 June 2021 2.00 pm – 3:30 pm (AEST)

17 June 2021 4.30 pm – 6.00 pm (AEST)

21 June 2021 11:00 am – 12:30 pm (AEST)

22 June 2021 5.00 pm – 6.30 pm (AEST)

Questions

If you have any questions about the consultation process, please contact Fiona Nemeh at ACTA: [email protected]