This summary outlines the key themes emerging from a targeted consultation process facilitated by ACTA on behalf of the Australian Research Data Commons (ARDC) to inform the planning and design of the Health Studies Australian National Data Asset (HeSANDA) initiative.
Latest Resource
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Involve Australia Guidelines for Community Involvement in Genomic Research
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Case study: Networking and information were key in setting up NECST
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Case study: How the Drug and Alcohol Clinical Research and Improvement Network (DACRIN) is enhancing consumer involvement in research
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Recommendations to improve cultural and linguistic diversity in clinical trials
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Development of the Consumer Involvement and Engagement Toolkit
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A snapshot of consumer engagement in clinical trials in Australia
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HeSANDA initiative stakeholder consultation project – final report
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HeSANDA Stakeholder Consultation Project
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ARDC HeSANDA Initiative Background Paper
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Consumer involvement in clinical trials: ethics committee members and research governance personnel training webinar – an overview
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Consumers in Clinical Trials: Jenny Lam
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Consumers in Clinical Trials: Zy Phillips
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Consumers in Clinical Trials: Mitch Messer
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ACTA Clinical Trial Diversity: CALD project
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Consumer Involvement and Engagement Toolkit
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What is randomisation?
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What are clinical trials?
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Consumer Involvement Consultation Report
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Using Linked Administrative Data in Clinical Trials: A Guide for Clinical Trialists and Researchers
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Studies Within A Trial SWATs webinar
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PHRN Data Linkage Webinar 4 – Using Linked MBS and PBS Data in Clinical Trials
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PHRN Data Linkage Webinar 3 – Ethical Considerations in Using Linked Data
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PHRN Data Linkage Webinar 2 – Accessing Linked Data
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PHRN Data Linkage webinar 2 – Accessing Linked Data
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PHRN Data Linkage Webinar 4 – Accessing MBS and PBS Data
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PHRN Data Linkage webinar 3 – Ethical considerations in using Linked Data
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PHRN Data Linkage Webinar 1: Designing Clinical Trials Using Linked Data
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PHRN Data Linkage webinar 1 — Designing Clinical Trials using Linked Data
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Unlocking the potential of administrative data
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The Health Consumer’s Perspective: Now and in the next five years
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Report on the Activities and Achievements of Clinical Trials Networks in Australia 2004-2014