Strengthen the investigator-led sector’s or the research sector’s capacity and ability to involve consumers in all activities across the research continuum.
- Identify and disseminate best practice options for the involvement of consumers across the research sector’s activities
- Develop and disseminate messages to the general community about the value of clinical trials, particularly around comparative effectiveness trials
Recent group activities
- International Best Practice of Consumer Involvement in Research: Discussion Paper
- Consumer Involvement in Clinical Trials: Consultation Report
- Workshop: Consumer Involvement & Engagement Toolkit – User Priority Setting
- AHRA Consumer & Community Involvement Project: attended national workshop
- Presented works at ARCS, SLSHD, Whitecoats, NHMRC, ACTA Summit, Bio Connections Australia and ACTA International Clinical Trials Conference 2019
- Clinical trial diversity project: aiming to improve clinical trial awareness, involvement, and access, with and for people from culturally and linguistically diverse (CALD) backgrounds within Australia.
Current group activities
The group is launching its Consumer Involvement and Engagement Toolkit, an online repository of guidance and tools to facilitate consumer involvement and engagement along the lifecycle of a clinical trial, and to support active and collaborative consumer partnerships with both researchers and research-focused organisations. This was developed in collaboration with CT:IQ.
Future group activities
This year, the group will develop recommendations to guide future action to engage the general community and enhance clinical trial awareness.
They will host a workshop on identifying opportunities and challenges of clinical trial awareness and engagement in the broader community and develop a recommendation report from the workshop outcomes.
With the Consumer Involvement and Engagement Toolkit now developed, the group will continue to maintain, review and develop the Consumer Involvement and Engagement Toolkit following the initial launch at the 2019 ACTA International Clinical Trials Conference. They will also continue to promote and facilitate the online toolkit across the sector.
They are planning two events (or webinars) to promote consumer involvement and engagement in clinical trials.
Consumers in Clinical Trials: Zy Phillips
Consumers in Clinical Trials: Mitch Messer
ACTA Clinical Trial Diversity: CALD project
ACTA Trial of the Year Award 2020 guidelines and nomination forms
Consumer Involvement and Engagement Toolkit
What is randomisation?
What are clinical trials?
Consumer Involvement Consultation Report
The Health Consumer’s Perspective: Now and in the next five years
Report on the Activities and Achievements of Clinical Trials Networks in Australia 2004-2014
Consumer and Community Involvement in Clinical Trials Workshop
Clinical trial awareness and access amongst culturally and linguistically diverse (CALD) populations: environmental scan
Tweetchats with PRAXIS and ACTA
Nominations extended for ACTA Trial of the Year Awards
Save the date for ACTA Clinical Trials 2020: National Tribute and Awards Ceremony
ACTA—a year in review, 2018-2019 financial year
Consumer Involvement Toolkit
Embedding consumers in our Conference
ACTA releases Consumer Involvement in Clinical Trials Consultation Report
Tender: Consumer Involvement and Engagement Toolkit – CLOSED
Consumer Engagement at ACTA Summit
ACTA encouraging and enabling consumer attendance at clinical trials sector events