Strengthen the investigator-led sector’s or the research sector’s capacity and ability to involve consumers in all activities across the research continuum.
- Identify and disseminate best practice options for the involvement of consumers across the research sector’s activities
- Develop and disseminate messages to the general community about the value of clinical trials, particularly around comparative effectiveness trials
Recent group activities
- International Best Practice of Consumer Involvement in Research: Discussion Paper
- Consumer Involvement in Clinical Trials: Consultation Report
- Workshop: Consumer Involvement & Engagement Toolkit – User Priority Setting
- AHRA Consumer & Community Involvement Project: attended national workshop
- Presented works at ARCS, SLSHD, Whitecoats, NHMRC, ACTA Summit, Bio Connections Australia and ACTA International Clinical Trials Conference 2019
- Clinical trial diversity project: aiming to improve clinical trial awareness, involvement, and access, with and for people from culturally and linguistically diverse (CALD) backgrounds within Australia.
Current group activities
The group is launching its Consumer Involvement and Engagement Toolkit, an online repository of guidance and tools to facilitate consumer involvement and engagement along the lifecycle of a clinical trial, and to support active and collaborative consumer partnerships with both researchers and research-focused organisations. This was developed in collaboration with CT:IQ.
Future group activities
This year, the group will develop recommendations to guide future action to engage the general community and enhance clinical trial awareness.
They will host a workshop on identifying opportunities and challenges of clinical trial awareness and engagement in the broader community and develop a recommendation report from the workshop outcomes.
With the Consumer Involvement and Engagement Toolkit now developed, the group will continue to maintain, review and develop the Consumer Involvement and Engagement Toolkit following the initial launch at the 2019 ACTA International Clinical Trials Conference. They will also continue to promote and facilitate the online toolkit across the sector.
They are planning two events (or webinars) to promote consumer involvement and engagement in clinical trials.
Latest Resources
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Case study: Networking and information were key in setting up NECST
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Case study: How the Drug and Alcohol Clinical Research and Improvement Network (DACRIN) is enhancing consumer involvement in research
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Recommendations to improve cultural and linguistic diversity in clinical trials
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Development of the Consumer Involvement and Engagement Toolkit
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A snapshot of consumer engagement in clinical trials in Australia
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HeSANDA initiative stakeholder consultation project – final report
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HeSANDA initiative stakeholder consultation project – Executive Summary of key findings
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HeSANDA Stakeholder Consultation Project
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Consumer involvement in clinical trials: ethics committee members and research governance personnel training webinar – an overview
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Consumers in Clinical Trials: Jenny Lam
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Consumers in Clinical Trials: Zy Phillips
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Consumers in Clinical Trials: Mitch Messer
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ACTA Clinical Trial Diversity: CALD project
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Consumer Involvement and Engagement Toolkit
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What is randomisation?
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What are clinical trials?
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Consumer Involvement Consultation Report
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The Health Consumer’s Perspective: Now and in the next five years
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Report on the Activities and Achievements of Clinical Trials Networks in Australia 2004-2014
Latest News
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Abstract submissions open for the ACTA 2024 Clincical Trials and Registries Symposium
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Consumer scholarship applications now open
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Australian Clinical Trials shine at annual ACTA Awards
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2023 ACTA International Clinical Trials Symposium
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Media Release: PHRP Excellence Awards – Highly Commended In Practice paper
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Consumer Expression of Interest – ACTA International Clinical Trials Symposium Complimentary Registration (Apply by Friday 6 October)
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ACTA to offer free consumer ASM registrations
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Accolades for Australian clinical trials at annual ACTA awards
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Consumer and Community Involvement in Clinical Trials webinar
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CT:IQ Health Consumer Survey
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Learn about clinical research project
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Push to Make Clinical Trials More Diverse
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‘Consumers as researchers’ at CHF 2021 Summit
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Consumer and Community Involvement in Clinical Trials Workshop
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Clinical trial awareness and access amongst culturally and linguistically diverse (CALD) populations: environmental scan
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Tweetchats with PRAXIS and ACTA
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Nominations extended for ACTA Trial of the Year Awards
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Consumer Involvement Toolkit
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Embedding consumers in our Conference
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ACTA releases Consumer Involvement in Clinical Trials Consultation Report
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Tender: Consumer Involvement and Engagement Toolkit – CLOSED
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Consumer Engagement at ACTA Summit
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ACTA encouraging and enabling consumer attendance at clinical trials sector events