Innovative Outcome Data

Widespread uptake of the use of linked data, automated PROMs, and registry datasets by CTN trials

  • Facilitate the availability, dissemination, and uptake of innovative methods for collection of trial outcome data
  • Influence policy and promote the development of shared infrastructure that can support innovative methods for collection of trial outcome data which is relevant to real-world populations

Recent group activities

Future activities

  • A report on Current approach to Registry Randomised Trials in Australia (Learnings from the 2019 ACTA Registry Randomised Trials)
  • The group plans to host a one-day workshop to address the enablers and barriers to registry-randomised trials this year
  • The group planned a series of work around electronic patient-reported outcome measures (ePROMs) and electronic patient-reported experience measures (ePREMS). This work was suspended when the development of a 10-year Registry Strategy was announced by the Department of Health. This work may be continued once the strategy is developed, to avoid potentially duplicating work
  • The group is exploring options for more events this year; specifically, more work in the ePROMs space.

Group Leadership

  • Prof Dorota Doherty
  • Dr Felicity Flack
  • A/Prof Steven Tong

Members

  • Prof Meera Agar
  • Dr Elizabeth Bailey
  • A/Prof James Boyd
  • Ms Angela Brennan
  • Dr Nadia Corsini
  • Ms Gorette de Jesus
  • Prof Ian Harris
  • Prof Carol Hodgson
  • Dr Paulette Kelly
  • Prof Madeleine King
  • Ms Carly McCallum
  • Prof David Pilcher
  • Prof Christobel Saunders
  • Dr Tom Snelling
  • Dr Charmaine Tam

Project Officer

Ms Anitha Balagurunathan

Board Sponsors

  • Prof Vlado Perkovic
  • Prof Christopher Reid
  • Prof Steve Webb
  • Prof John Zalcberg